tag:blogger.com,1999:blog-530548799681444324.post1140172324047414456..comments2023-10-07T11:03:10.202-05:00Comments on Autist's Corner: Autism Speaks Interrupts My Etsy BrowsingLindsayhttp://www.blogger.com/profile/10860246538349067232noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-530548799681444324.post-63266778459451888622011-05-09T20:21:52.286-05:002011-05-09T20:21:52.286-05:00Thanks Lindsay
I am skeptical about anyone in powe...Thanks Lindsay<br />I am skeptical about anyone in power these days. I shouldn't judge Ari since I don't know him in person and don't know his motives but I think it is wrong to assume he are genuine simply because he has AS. Plenty of people use their respective backgrounds to get others' of that same background to back them in elections or to buy their products.<br /><br />In addition to being a marketing scheme, ND movement also creates a cult of personality regarding AS. In doing so, they not only undermine the diversity that exists among those on the spectrum, they also confine us to that particular label just as so called professionals have done with us our entire lives. I like to think of myself as a complex human being, not a textbook definition and I hope you feel the same way.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-530548799681444324.post-7359742748181964062011-05-08T23:45:49.227-05:002011-05-08T23:45:49.227-05:00Somehow I missed Anonymous's comment.
Anon, I...Somehow I missed Anonymous's comment.<br /><br />Anon, I agree with you that ASAN isn't all-representative --- that's why I was disappointed that it was the only by-autistics-for-autistics-type organization I could think of at the time.<br /><br />There are so many others that are just as good, and that might even be better at representing/advocating for people with more severe disabilities. (TASH is one that I can think of, and NOEWAIT is all about improving access to support services, which is probably a higher priority for autistics with more severe disabilities who can't live on their own without such supports).<br /><br />I have no reason to mistrust Ari (I like him, based on the relatively little I know of him), but I can understand your fears about ND becoming more about prominent personalities than about truly representing all autistic (or otherwise non-neurotypical) people; that seems like a common problem in politics.<br /><br />That said, Laura makes a good point that ND in general, and ASAN in particular, isn't as restricted to academically gifted, verbal, relatively independent Aspies as it's often portrayed as being. <br /><br />Anyway, no, it wasn't my intent to portray ASAN as the One True Organization for Autistic People --- I know there are autistic people it doesn't speak for. That's why I included all those other organizations in the post, and I wish I had thought to include them in my letter to the other Etsy vendor.Lindsayhttps://www.blogger.com/profile/10860246538349067232noreply@blogger.comtag:blogger.com,1999:blog-530548799681444324.post-45870543729638553932011-05-08T22:02:54.548-05:002011-05-08T22:02:54.548-05:00Anonymous -
The ND movement is commonly stereotyp...Anonymous -<br /><br />The ND movement is commonly stereotyped as being only for those who are "higher-functioning", yet ASAN has board members who are unable to speak verbally.<br /><br />While I agree that Ari can certainly be a controversial figure, I feel that since he is Autistic himself, he understands the Autistic experience better than any neurotypical. He and I may not know what it is like to be non-verbal, but we do know how it feels to live as an Autistic person in an NT's world.Lauranoreply@blogger.comtag:blogger.com,1999:blog-530548799681444324.post-13500062951819737232011-04-23T19:07:34.753-05:002011-04-23T19:07:34.753-05:00Autism Speaks mainly deals with more severe cases ...Autism Speaks mainly deals with more severe cases of Autism. I doubt they have AS in mind when they speak of curing Autism. And ASAN does not speak for all people with AS, let alone more severe cases. I fear the ND movement has become more of a cult of personality than a respected movement. It's not as if the National Disability Counsel held an election and we all voted them in. It seems that Ari Ne'eman is using his Asperger's diagnosis-and exploiting anyone who bears that label-to further his political aspirations and you would be blind not to see through it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-530548799681444324.post-751146510651421782011-04-14T17:18:35.370-05:002011-04-14T17:18:35.370-05:00@ Meg Evans:
I edited the post to add autistics.o...@ Meg Evans:<br /><br />I edited the post to add autistics.org to the list.<br /><br />"ASAN does not have, and never had, any expectation of receiving all donations from autistic-friendly people ..."<br /><br />Oh, I didn't think you did! I just wished I could've remembered more organizations at the time, so that I could've listed them along with ASAN in the e-mail.Lindsayhttps://www.blogger.com/profile/10860246538349067232noreply@blogger.comtag:blogger.com,1999:blog-530548799681444324.post-40966966082880690862011-04-13T20:45:57.129-05:002011-04-13T20:45:57.129-05:00Autistics.org deserves to be on a list of self-adv...Autistics.org deserves to be on a list of self-advocate groups that are worthy of donations; it's been around for a long time and inspired many people to get involved.<br /><br />I'd like to make clear that ASAN does not have, and never had, any expectation of receiving all donations from autistic-friendly people -- we're glad to see others in our community get recognition and support too.Meg Evanshttps://www.blogger.com/profile/18404734004237299850noreply@blogger.comtag:blogger.com,1999:blog-530548799681444324.post-79487772853403265032011-04-13T03:50:07.417-05:002011-04-13T03:50:07.417-05:00Thanks for linking to my post about JER, I had for...Thanks for linking to my post about JER, I had forgotten about it. I still don't have anything against him, really, just not confident that he will do much for us.Clayhttps://www.blogger.com/profile/09424036357963352399noreply@blogger.comtag:blogger.com,1999:blog-530548799681444324.post-83830274953258222732011-04-12T16:08:30.629-05:002011-04-12T16:08:30.629-05:00I think the seller will appreciate your message. I...I think the seller will appreciate your message. It's nicely worded and very informative. <br />And let me say, I love ADAPT. I work with the founders of ADAPT's Montana branch, and they are incredible people all around.Leah Janehttps://www.blogger.com/profile/16798094383285526940noreply@blogger.com