I Am Spartacus! You Might Be Spartacus, Too

So the Judge Rotenberg Center has been in the news again, this time because of an article in New York magazine about Andre McCollins, a young man from Brooklyn who had been sent there in 2001, when he was sixteen. His mother had sent him there because she thought it looked like a pleasant place, with dedicated and competent staff, where he might learn to control the rage attacks he sometimes had. 

Here's the part of the New York article where she talks about what motivated her to enroll him there; it very much gives the impression she didn't know how brutal the disciplinary regime was going to be:

She called the Board of Education for help finding a new school, and an employee told her about the Rotenberg Center. Stepping inside for the first time, Cheryl [McCollins] was dazzled by the décor. There was nothing institutional about this place; the carpet felt five inches thick. "I thought the place was beautiful," she recalls. "I thought these people really took pride in what they did." She loved that residents lived in lavishly decorated houses -- not dorms. The boys wore button-down shirts and dress pants. And there were surveillance cameras everywhere; she couldn't imagine a better way to ensure that Andre wouldn't be victimized again. 

School officials told her about their program and explained how the electric-shock device worked. The staffers showed her a video, too, of other students who'd been hooked up to the GED ["Graduated Electronic Decelerator," the name for the shock device] and appeared to have been completely transformed by it. "I was so excited," she says. "I was like, 'He's going to be cured? This can really stop all those behaviors, the aggression? And he won't break up my furniture, he won't fight?' 'Yes, this device does it.' I was like, 'Wow! You're kidding! Why didn't anyone tell me about this before?'"  

Twenty months into his stay there, Andre McCollins was strapped down and shocked repeatedly for a period of seven hours. The way punishment at the JRC works, they have a list of "behaviors" targeted for each person. Whenever the person does something on the list, they get a shock. Andre's list apparently included such things as screaming and tensing up his entire body, which he did throughout his seven-hour ordeal.

I have to say now that I really, really identify with Andre, even more than I normally identify with the victim in such cases of abuse of disabled children or dependent adults. Andre and I share several things: we're the same age, both born in the year 1984 (poor, poor Andre, he has seen the inside of Room 101), both diagnosed with a pervasive developmental disorder in early childhood. 

Most importantly, we share a pattern of behavior.

The "full-body tense-up."

Obviously, I'm not Andre and I can't tell you what's going through his head when he tenses up his entire body, but I can tell you what it's like when I do it. 

First, some background: though I can speak fluently, I can really only do it when I'm not doing anything else. If I'm intent on something, I won't answer you if you speak to me. I probably won't even acknowledge you until a few minutes later, or until I can tear myself away from whatever it is I'm doing. Especially if I'm doing something mentally taxing, especially something nonverbal and mentally taxing, like math, I may need to wait a few beats to remember how to speak: what the words are, how to put them together in ways that make sense. 

I don't have to be doing hard or creative work for this problem to arise: physical pain and emotional stress are also mentally taxing, and also effectively put words out of my reach for a while. 

As such, my primary response to fear or pain has never been to vocalize. Most of the time it just doesn't occur to me. I react with my body instead, stiffening my posture, recoiling back and tensing every muscle simultaneously. (Sometimes when I'm in pain I also make a hissing noise, but not always). This is what I do whenever anyone touches me. I have reacted that way to touch since I was a baby: my mom says I used to stiffen up in her arms when she tried to hold me. 

It is, you might imagine, a completely involuntary reflex.

So, when I got to this part of the article (TRIGGER WARNING) ---

Usually after Andre got a shock and was restrained, he'd calm down, but on this day he only got more agitated. The more upset he became, the more he tensed up his body -- and the more he tensed up, the more shocks he received. Between 10 a.m. and about 11 a.m., the workers shocked him fourteen times. Each press of the button delivered a loud, high-pitched alarm -- informing employees the shock had been delivered -- while Andre's cries echoed down the hall.

"No, don't do that!"

"I'm sorry. Sorry. Sorry." 

"I won't do it again."

"No, please."

"Stop! Stop! For real!"

"Help me! Help! Help!"

Employees came and went throughout the morning and into the afternoon. They attached two more electrodes, so Andre had five total: on both arms, both legs, and his torso. Following the usual protocol, they tested the batteries on his shock device; rotated his electrodes so they wouldn't leave marks on his skin; offered him water. They studied his "behavior recording sheet" to figure out exactly what behaviors they were supposed to punish. And they documented each shock with the reason it was given: "Scream" or "Tense Up." 

Hour after hour went by and nobody knelt down next to Andre to try to calm him. Attention was considered a reward -- and a student who's exhibiting "targeted behaviors" is not supposed to receive any. When the staffers did speak to Andre, they were required to follow a script, like a case manager did at 1:25 p.m., when she pressed the button for shock eighteen, then said: "Andre, no full-body tense-ups." If any of the workers thought these shocks were excessive, they kept it to themselves. They all knew that if they didn't shock a student when they were supposed to, the phone in the classroom would ring and there would be a monitor on the line ordering them to press the button. 

--- I felt horror, not only at what they were doing to him, but also because they escalated it whenever he physically reacted to the pain. When you realize that, and let it sink all the way in, you see how easily they could have killed him that day. The perverse logic --- tensing up his body (showing fear and pain) is bad, so we will shock him (make him feel fear and pain) whenever he does it until he stops --- reminds you of other no-win scenarios, like the witch trials where they would determine an accused witch's innocence based on whether she sinks or floats in water. If she floats, she's guilty, and her accusers have grounds to kill her; if she sinks, she was innocent, but she's dead anyway.

By now, you're probably asking, "Why is this woman* going on at such lengths about her feelings, and her weird stiffening-up reflex? What does any of this have to do with Andre McCollins?" 

That's a fair question --- I'm not Andre, and I don't have any better idea than you do what he was thinking or feeling on that day. But because of all the things I do happen to have in common with him, I get a strong sense of "there but for the grace of God random chance go I" from his story.

I also believe there's a very strong tendency for non-disabled people to "other" people like Andre McCollins --- they might be horrified at what happened to him, but at the same time they know how impossible kids like him can be. They're aggressive. Violent. They can't be reasoned with. They're a "they," never a "we." People might think they ought to be treated more gently than they are at the JRC, but they have to be put somewhere, controlled somehow, ... don't they?

That's why I have made this post so personal. I'm not Andre, but I share some things with him, and more than anything I think people need to see articles from people who are like Andre in various ways saying, unambiguously, "THIS IS NOT OKAY. IT WOULD NOT BE OKAY IF YOU DID IT TO ME, AND IT IS NOT OKAY THAT YOU HAVE DONE IT TO HIM." If I come across anything Andre himself has written, I will link to it.

*Bitch, to the uncharitable. Cunt, to the vulgar. Perhaps "mewling quim," if you are Loki.

Republicans vs. the EPA - Part II

In this installment of the "Republicans vs. the EPA" series I'm going to focus on one particular legislative attempt to abolish the EPA.

In the spring of 2011, Republican legislators in both houses introduced two versions of a bill that would abolish both the EPA and the Department of Energy, and replace them with a combined Department of Energy and Environment.

This was promoted as a cost-saving measure, but it seems to me that it would also mean the environmental-protection aspect of the combined agency's mission would necessarily be compromised by no longer being the sole guiding purpose of its own agency, but instead one of many different, sometimes competing objectives.

For instance, the proposed DOEE would be responsible, not just for drafting and enforcing regulations to protect the environment and human health, but also for making sure the country's power plants (particularly the nuclear ones) are safe from terrorist attacks, and for research into better ways to generate electricity.

It seems to me very likely that, in the tug-of-war for funding, the counterterrorism and R&D functions would win a greater share of the agency's budget than the boring, stick-in-the-mud regulatory function. I also find it easy to imagine intra-agency pressure building on the regulatory side not to regulate natural-resource extraction too heavily --- especially in areas where the expected energy yield is high, like the use of hydraulic fracturing to get at buried reservoirs of natural gas.

(You don't have to take my word for it that combining these agencies would produce a conflict of interest, either --- here's a short article that former DOE employee Joe Romm wrote for Think Progress explaining why he thinks that would be the likely outcome of such a merger.)

Anyway, that's enough background information. On to the lists!

Here are the seventeen Republican senators who co-sponsored the Senate version of the bill:
Sen. John Barrasso (R-WY)*
Sen. Roy Blunt (R-MO)
Sen. John Boozman (R-AR)
Sen. Richard Burr (R-NC) - wrote and introduced the bill
Sen. Dan Coats (R-IN)
Sen. Tom Coburn (R-OK)
Sen. Thad Cochran (R-MS)
Sen. Jim DeMint (R-SC)
Sen. Mike Enzi (R-WY)
Sen. Orrin Hatch (R-UT)
Sen. Kay Bailey Hutchison (R-TX)
Sen. Ron Johnson (R-WI)
Sen. Mike Lee (R-UT)**
Sen. John McCain (R-AZ)
Sen. Richard Shelby (R-AL)
Sen. John Thune (R-SD)
Sen. Pat Toomey (R-PA)
Sen. David Vitter (R-LA)

And here are the eleven House members who co-sponsored the House version of the bill almost a year later:
Rep. Marsha Blackburn (R-TN) - introduced and sponsored bill
Rep. Steve Chabot (R-OH)
Rep. Renee Ellmers (R-NC)
Rep. Scott Garrett (R-NJ)
Rep. Kay Granger (R-TX)
Rep. Tim Huelskamp (R-KS)
Rep. Sam Johnson (R-TX)
Rep. Blaine Luetkemeyer (R-MO)
Rep. Sue Wilkins Myrick (R-NC)
Rep. Ted Poe (R-TX)
Rep. David P. (Phil) Roe (R-TN)

The Senate bill seems to have died in committee on the same day it was introduced. The House bill, though it bounced around lots of different committees, also seems to have been tabled. Neither one ever came up for a vote.

*I'm really tempted, doing those party-and-state abbreviations, to borrow Melissa McEwan's convention of writing things like "R-Epulsive", "R-Idiculous," "R-etrograde," "R-Eally??", etc. But I figured I'd best stick with writing their actual state, in the interest of providing more information.

**Aren't Wyoming and Utah lucky? Both of those states' entire Senate delegations co-sponsored this bill!

Republicans vs. the EPA - Part I

I read a post on a blog called Brute Reason listing the worst parts of the Texas Republican Party's platform, and the first thing on the list was a call to repeal the Endangered Species Act and abolish the Environmental Protection Agency (EPA).


This was not the first time I'd seen the EPA targeted in Republican rhetoric; actually, I seem to read something about how the EPA is too powerful*, too radical**, and ought either to have its influence greatly diminished or be dissolved outright coming from a prominent Republican on a regular basis!


I started to leave a comment to that effect on the other blogger's post, and decided to perform an exercise in just how mainstream this virulent anti-environmentalism is in the Republican Party.

Since Miriam's post was about a state party platform, I think I will start there as well.

Here's a list of all the states whose Republican party platforms include calls for the abolition of the EPA: 
Iowa (PDF - relevant quotes on page 5):

Environment 

9.1 We support the pre-eminence of personal property rights and the freedom for individual property owners to manage their property above the protection of wildlife. We support maintaining an environmental policy that protects the rights of humans before animals, insects, and other creatures.

... 

9.3 We call for closing government branches, offices, and agencies that strip us of economic prosperity in the name of saving the environment. We should eliminate policies and rules related to this.

Nevada:

We support eliminating the ... Environmental Protection Agency (EPA) and other bureaucracies that have consistently demonstrated wasteful spending and operational inefficiencies. We believe these functions, where needed, should be relegated to the States as defined by the Tenth Amendment.

Oklahoma (PDF - relevant quote on page 34):

WE SUPPORT: 

...6. Abolishment of the Environmental Protection Agency, ... and distribution of [its] powers and responsibilities to state authority.

Texas (PDF - relevant quote at top of page 4):

Protection from Extreme Environmentalists - We strongly oppose all efforts of the extreme environmental groups that stymie legitimate business interests. We strongly oppose those efforts that attempt to use the environmental causes to purposefully disrupt and stop those interests within the oil and gas industry. We strongly support the immediate repeal of the Endangered Species Act. We strongly oppose the listing of the dune sage brush lizard as either a threatened or an endangered species. We believe the Environmental Protection Agency should be abolished.

Wyoming (PDF - relevant quote on page 48):

Be It Further Resolved that the Wyoming Republican Party calls for elimination of the U. S. Environmental Protection Agency.

... and here are all the states whose branches of the Republican Party have language in their platforms that, while not calling for the outright elimination of the EPA, seeks to restrict its  
California (PDF - relevant quotes on pages 1 and 4):

Government should create a favorable policy environment supportive of California's farmers and ranchers ... . California's approach, rather, has been one beset by over-regulation, environmental extremism, and restricted access to water, the agricultural sector's lifeblood.

... 

We believe that we can have both a healthy economy and a healthy environment, and believe in environmental policies supported by sound science, innovation, new technologies and incentives rather than regulation, taxation and litigation. Environmental regulations must be balanced and tempered by the effect that they will have on workers and on the economy. We believe that the Kyoto Treaty is fundamentally flawed because ignores the fact that the largest source of greenhouse gas in the world is China, which is exempt from the requirements of Kyoto.

...

We believe that entrepreneurs, using technology, innovation and incentives, are more likely to solve environmental problems than bureaucrats. 

Idaho (PDF - relevant quotes pp. 6-7):

Sec. 1 We believe that it is ultimately the individual's responsibility to act as stewards of their environment. The quality of our natural environment should be protected, and enhanced, while allowing reasonable, orderly growth with emphasis on multiple uses, local control, and minimal government regulation. 

Sec. 2 We believe the administration of federal environmental policy must be modified. These policies must give equal consideration to potential human suffering caused by restriction or elimination of basic human needs such as jobs, energy and overall quality of life. We support federal and state measures to re-establish the primacy of state government for implementation of environmental policy. 

Sec. 3 We discourage international regulations on industry which attempt to halt the production of certain industrial byproducts. Instead, we encourage citizens to adopt buying habits that promote a clean earth.

Maine:

Promote energy independence aggressively by removing the obstacles created by government to allow private development of our resources; natural gas, oil, coal, and nuclear power.

Missouri (PDF - relevant quotes pp. 4-5):

At a time when the state and federal economy is faltering, some in Washington have proposed extreme, job-killing measures to regulate carbon dioxide. While it is important to balance economic growth and the environment, these regulations, which would raise prices on every single person in the country, are a step too far.  

Therefore, the Missouri Republican Party SUPPORTS:

• Efforts to prevent any state or federal cap & trade scheme from taking effect.

• Efforts to prevent EPA from unilaterally regulating carbon dioxide.

...

• Environmental regulation premised upon sound free market principles and elimination of environmental regulation that imposes excessive financial burdens for tenuous incremental benefit.

North Carolina (PDF - relevant quote bottom of page 6):

If regulation is needed to protect the environment, government should only proceed with evidence that the benefits warrant the cost. Humans are a critical component of the ecosystem. Regulations must ensure a balance between humans and the environment.

North Dakota (PDF, relevant quotes pp. 5-7, p.10, pp. 13-15):

RESOLUTION NUMBER 11: ENERGY INDUSTRY... BE IT RESOLVED: The North Dakota Republican Party supports a balanced approach to the environmental and economic issues which will provide resolution to emissions of all sources of green house gases; and  

BE IT FURTHER RESOLVED: The North Dakota Republican Party opposes efforts like the Kyoto Protocol and legislative proposals such as McCain-Lieberman, Lieberman-Warner, Boxer-Sanders, Kerry-Snowe, Bingaman-Specter, and Feinstein-Carper that impose a cap and trade program that will adversely affect North Dakota's economy without balance to the environmental issues....RESOLUTION NUMBER 13: NATIONAL ENERGY SUPPLY STABILITYWHEREAS: The environmental impact of oil drilling and refineries can be reasonably controlled by modern technology; and  

WHEREAS: The United States needs increased supply of crude oil from North American sources....THEREFORE, BE IT RESOLVED: The North Dakota Republican Party supports private industry building or expanding more oil refineries in North Dakota and in the nation to lower the cost of gas and reduce our dependence on foreign oil; and  

BE IT FURTHER RESOLVED: The process for obtaining the permits or expand to build refineries should be changed in a manner that would speed the process; and 

BE IT FURTHER RESOLVED: The North Dakota Republican Party supports the drilling for oil off America's coasts and other places where it is now restricted....
RESOLUTION NUMBER 24: PROPERTY OWNERS' RIGHTS'WHEREAS: At the national level, some administrative rules and regulations promulgated to implement legislation, such as, but not limited to, "Swampbuster," the Clean Water Act, and the Endangered Species Act have usurped the rights of citizens to the beneficial use of private property without just compensation; and 

WHEREAS: As state agencies promulgate rules and regulations to implement state laws, they regularly affect the use of privately-held resources without due consideration of the economic impacts the rules and regulations impose on the owners of those resources; and 

WHEREAS: As governmental agencies (and the regulations they foster) have grown, private property rights have been diminished, and the operating costs of businesses forced to comply with such increased regulation have increased dramatically; and 

WHEREAS: The quality of life for all North Dakotans hinges on the state's businesses being allowed to compete without unnecessary and undue regulations; 

THEREFORE, BE IT RESOLVED: That the North Dakota Republican Party supports any legislation that prevents the taking of rights to the beneficial use of property by its owner without just and actual compensation....RESOLUTION NUMBER 32: OPPOSING DISCRETIONARY REGULATION OF CARBON DIOXIDE BY THE U.S. EPA... BE IT RESOLVED: That the North Dakota Republican Party opposes the delegated discretionary regulation of carbon dioxide by the U.S. EPA or any other agency, and supports that any restrictions on carbon dioxide should be directed only by the elected members of Congress....RESOLUTION NUMBER 35: OPPOSING THE EXPANSION OF FEDERAL CONTROL OVER WATERWHEREAS: The federalized control of "all" waters in the United States means centralized control of the most critical requirement for the sustenance of all life, including human life; 

WHEREAS: The federalized control of "all" water defines a jurisdiction so comprehensive as to constitute control of even ephemeral waters; 

WHEREAS: The management of land and non-navigable waters is fully integrated and cannot be separated, so that federalized control of "all" waters virtually constitutes total control of all agriculture, and all management or development of private land; 

WHEREAS: Therefore, federalized control of "all" waters constitutes nothing other than total federal control and jurisdiction over the water we drink, the production of the food we eat, the measures we undertake to protect or enhance our properties, and provides a tool so powerful as to create a risk of tyranny in its full application;...THEREFORE BE IT RESOLVED: The North Dakota Republican Party opposes any federal agency rules ... that may be proposed to broaden the authority to regulate water, and urges their immediate repeal ...

South Carolina (PDF, relevant quote on page 25):

1. Environmental risks/concerns must be faced accurately, neither exaggerated nor underestimated; environmental remediation must incorporate the concepts of cost/benefit, risk analysis, and public/private cooperation. 

2. Environmental progress is integrally related to economic development as economic growth generates the capital to pay for environmental gains and as environmental preservation creates an atmosphere conducive to a high quality of life and economic development. 

3. The right to own, use, and dispose of private property is a fundamental political tenet of all free nations. Property rights are not to be violated by the misuse or overuse of government regulation and should dictate due compensation when a taking occurs. 

4. The United States, in the exercise of her sovereignty, should not "ratify any treaty that moves environmental decisions beyond our democratic process and transfers beyond our shores authority over U.S. property" (1992 Republican National Platform).

Vermont:

SECTION III  

BALANCING OUR ECONOMY AND ENVIRONMENT

Vermont Republicans believe we must value Vermont's economic environment with the same respect we value our natural environment. 

Wisconsin:

We believe we can solve our environmental problems more quickly and cost-effectively with innovation and new technology than with more litigation and more government regulation. 

We believe entrepreneurs are more likely to solve America's environmental problems than bureaucrats. 

We support measures to encourage businesses to voluntarily cut pollution.

(A note about the wording on some of these, particularly about striving for "balance" between the environment and the economy, or, more specifically, between a given regulation's benefit to the environment and the cost to industry of compliance with it: the EPA already factors such cost/benefit analyses into its recommendations, so what these stipulations are actually asking is that greater weight be given to the economic-impact side of the cost/benefit equation.)


I was going to have this all be one post, listing not only all the state Republican Party platforms with anti-EPA (or generically anti-environmental regulation) language but also every currently-serving US Senator, Representative, or state governor who has made anti-EPA pronouncements, or acted to abolish, defund, restrict the EPA or block its actions, but the list got so long, and it was taking so long to ferret them all out, that I decided to break it up in the interest of being able to post something this month. (Hyperbole, I hope).

As to this part of the list, I'm not sure whether I'm more relieved to see that my current state of residence is not on the list than I am mortified to see the state I was born in, and still consider my home state, right there at the top. I had thought better of Iowa.

*It's not

**Oh, how I wish

Cat

Here's a picture of Magic that I took recently:

Scarab Ring

Clarissa finally inspired me to take pictures of this ring, which I bought on Etsy maybe a year ago, and which is currently my favorite ring.

Here's a shot of my whole hand, so you can see about how big it is:

My hand

Here's a close-up, for detail:

Close-up view of scarab ring, index finger

Three-quarter view, with a clenched fist:

My index finger, balled into a fist. Scarab ring takes up entire length of first finger joint

Side view, so you can see 1) how flat it is, and how thin and light the metal is; and 2) the intricate designs worked into the band:

Where'd the beetle go?!

All Science Is Microbiology

As with any major news story, there has been a wave of editorial cartoons referencing the discovery of the Higgs boson. But I noticed something funny about the way some of these cartoonists have chosen to depict this event: the kinds of lab settings that they draw, from the equipment being used to depictions of (what is apparently supposed to be) the particle itself, suggest to me that the field of science in which this discovery occurred is not theoretical physics but microbiology.

Here is the cartoon (from my own local paper, the Kansas City Star) that made this obvious to me:

I don't know where that speech bubble is supposed to be coming from, but the things inside the circle (which looks a lot like the view through a microscope to me) are obviously cells of some kind. Except for the one on the right, which seems to be a grossly outsized mitochrondrion ...

Once I saw that, I remembered this earlier cartoon, where the visual non sequitur had gone right by me the first time, but after seeing the above cartoon, with the amoeba-looking thing labeled "God particle," it finally clicked for me.

I hope he's using the highest possible magnification on that thing ...

The microscope. The guy in this cartoon is looking through a light microscope. Light microscopes use visible light passed through a series of glass lenses to magnify whatever's on the slide; the greatest degree of magnification possible with this technology is an image 1,000 times the actual size of the object.


According to this webpage, the smallest thing you can see with just your eyes is 0.1 mm (100 micrometers, or 100,000 nanometers) long; that would mean, I think, that the smallest thing you could see at 100x magnification would be 0.001 mm (one micrometer, 1,000 nanometers) long. That same webpage lists the size of the smallest thing visible by light microscopy as 500 nanometers; another website gives the theoretical limit as 200 nanometers, which is approximately equal to the wavelength of visible light.


The webpage I cited first in the above paragraph, the "Cell Size and Scale" page, further states that the most powerful electron microscopes (microscopes that don't rely on visible light, but which use a beam of electrons to illuminate whatever they're pointed at) can resolve individual molecules, even individual atoms.


Here is a page on CERN's website that does a decent job of conveying just how small the particles they're trying to learn about are:

The infinitesimal scale of particle physics is mind-blowing, and rather abstract to imagine. If we enlarge an atom to the size of the Earth, then the protons and neutrons that make up the nucleus of the atom would each measure the length of an Olympic stadium. Smaller still are the quarks. If we consider our hypothetical atom blown up to the size of the Earth, then a quark would be smaller than a tennis ball. 

However, this does not give us a very good idea of the size of the atom itself. So staying with the same analogy, but scaling things in the opposite direction, if an atom was the size of the Earth, then an amoeba would be as big as our solar system. Going even further, the distance from the centre of Geneva to CERN (about 10 km) would stretch across the entire Milky Way galaxy.  

So if, as mentioned above, a single atom represents the smallest thing that can be seen by any microscope, these subatomic particles are smaller than that by many orders of magnitude. So the possibility of seeing even one of the larger subatomic particles through a light microscope makes the idea of me taking off my glasses, peering into a cup of coffee and watching individual molecules of sugar dissolve sound plausible by comparison.

More examples of cartoons showing people looking through light microscopes at the "God particle:

Whatever you do, don't blink!

 Here's one showing the "God particle" in what appears to be a petri dish:

This one is from England, so at least it's not just Americans who don't know how big the Higgs is!

... and, finally, here's one showing it in a test tube:

This one is visible to the naked eye!

(People might associate the test tube more with chemistry than with microbiology, but you can indeed grow cultures in a test tube. Bacteria cultured in a test tube are going to be suspended in a liquid growth medium, rather than spread across a solid one, but they can live there just as well.)


Anyway, I got a huge kick out of these cartoons, seeing as how they unconsciously nudge you toward the conclusion I named in my post title: All Science Is Microbiology. Even when it's theoretical physics. 


I have no idea if anyone besides me finds this funny; of anyone who reads, or might read, here I'd be most confident of thevenerablecorvex sharing my appreciation of it. Hopefully if I name her, she will see this post and laugh, too.

Occupational Hazards

I'm working on a fairly technical post about MMS, and this verse has been running through my head for some time now:


Johnny was a chemist,
He isn't anymore
'Cause what he thought was H₂O
Was H₂SO₄ 

Post #300

Numbers:


Blog founded - 9/4/2007


100th post - 1/1/2009
Interval between blog founding and 100th post: approx. 1 year, 5 months


200th post - 9/20/2010
Interval between 100th post and 200th post: approx. 1 year, 9 2/3 months


300th post - 6/30/2012
Interval between 200th post and 300th post: approx. 1 year, 9 months


Amazing. I was sure I was getting slower, was taking longer to write fewer posts. Looks like that's not really the case, though. 

New Medicaid Regulations Are Open to Public Comment

A little over a month ago, the Centers for Medicare and Medicaid Services proposed some new rules for home- and community-based services for people with disabilities, trying to ensure that states do everything they can to make sure that disabled people covered by Medicaid can actually get the services they need in their own homes, or in supported residential settings where they have the same amount of freedom and control over their own lives that they would if they were living on their own.


That's the spirit of the law, anyway. Lots of advocacy groups made up of people whom this law is supposed to benefit have written recommendations for wording that makes sure the letter of the law honors the spirit --- that health-care providers receiving Medicaid funding to give people supportive housing don't just take the money and throw the intended beneficiaries into a group home that reproduces all the restrictions, power dynamics, and other bad things about institutions in a somewhat different setting.


The rule change is open to public comment until Monday; I'd like to add my voice to a chorus of voices emphasizing just how important autonomy and freedom from restriction are. If you have anything to say about it, especially if you've got any concrete ideas or relevant personal experiences, go here, click the big blue "Comment Now!" button, and let loose.


The Autistic Self-Advocacy Network and the Administration on Intellectual and Developmental Disabilities have both written about this proposed rule change; AIDD's page  is an easy-to-read summary of what the rules entail, while ASAN's page is more of a critique.


Here is the proposed definition of "home and community-based setting":

(i) The setting is integrated in, and facilitates the individual's full access to, the greater community, including opportunities to seek employment and work in competitive integrated settings, engage in community life, control personal resources, and receive services in the community, in the same manner as individuals without disabilities. 

(ii) The setting is selected by the individual from among all available alternatives and is identified in the person-centered service plan. 

(iii) An individual's essential personal rights of privacy, dignity and respect, and freedom from coercion and restraint are protected. 

(iv) Individual initiative, autonomy, and independence in making life choices, including but not limited to, daily activities, physical environment, and with whom to interact are optimized and not regimented. 

(v) Individual choice regarding services and supports, and who provides them, is facilitated. 

(vi) In a provider-owned or controlled residential setting, the following additional conditions must be met. Any modification of the conditions, for example, to address the safety needs of an individual with dementia, must be supported by a specific assessed need and documented in the person-centered service plan: 

  (A) The unit or room is a specific physical place that can be owned, rented or occupied under another legally enforceable agreement by the individual receiving services, and the individual has, at a minimum, the same responsibilities and protections from eviction that tenants have under the landlord tenant law of the State, county, city or other designated entity; 

(B) Each individual has privacy in their sleeping or living unit:         (1) Units have lockable entrance doors, with appropriate staff having keys to doors;         (2) Individuals share units only at the individual's choice; and         (3) Individuals have the freedom to furnish and decorate their sleeping or living units. 

(C) Individuals have the freedom and support to control their own schedules and activities, and have access to food at any time; 

(D) Individuals are able to have visitors of their choosing at any time; and  

(E) The setting is physically accessible to the individual.

They also spell out what a "home and community-based setting is not:

Home and community-based settings do not include the following: 

(i) A nursing facility; 

(ii) An institution for mental diseases; 

(iii) An intermediate care facility for [people with intellectual disabilities] 

(iv) A hospital providing long-term care services; or 

(v) Any other locations that have qualities of an institutional setting, as determined by the Secretary. The Secretary will apply a rebuttable presumption that a setting is not a home and community-based setting, and engage in heightened scrutiny, for any setting that is located in a building that is also a publicly or privately operated facility that provides inpatient or institutional treatment, or in a building on the grounds of, or immediately adjacent to, a public institution, or disability-specific housing complex.

And here is the definition of "person-centered service plan": 

The person-centered service plan must reflect the services and supports that are important for the individual to meet the needs identified through an assessment of functional need, as well as what is important to the individual with regard to preferences for the delivery of such services and supports. Commensurate with the level of need of the individual, and the scope of services and supports available under the State plan HCBS benefit, the plan must: 

(1) Reflect that the setting in which the individual resides is chosen by the individual. 

(2) Reflect the individual's strengths and preferences. 

(3) Reflect clinical and support needs as identified through an assessment of functional need. 

(4) Include individually identified goals and desired outcomes. 

(5) Reflect the services and supports (paid and unpaid) that will assist the individual to achieve identified goals, and the providers of those services and supports, including natural supports. Natural supports cannot supplant needed paid services unless the natural supports are unpaid supports that are provided voluntarily to the individual in lieu of State plan HCBS. 

(6) Reflect risk factors and measures in place to minimize them, including Individualized backup plans. 

(7) Be understandable to the individual receiving services and supports, and the individuals important in supporting him or her. 

(8) Identify the individual and/or entity responsible for monitoring the plan. 

(9) Be finalized and agreed to in writing by the individual and signed by all individuals and providers responsible for its implementation. 

(10) Be distributed to the individual and other people involved in the plan. 

(11) Include those services, the purchase or control of which the individual elects to self-direct, meeting the requirements of [earlier section] of this subpart. 

(12) Prevent the provision of unnecessary or inappropriate care. 

(13) Other requirements as determined by the Secretary. 

... and rules for how the service plan should be drawn up:

Based on the independent assessment required in [earlier section] of this subpart, the State must develop (or approve, if the plan is developed by others) a written service plan jointly with the individual (including, for purposes of this paragraph, the individual and the individual's authorized representative if applicable). The person-centered planning process is driven by the individual. The process: 

(1) Includes people chosen by the individual. 

(2) Provides necessary information and support to ensure that the individual directs the process to the maximum extent possible, and is enabled to make informed choices and decisions. 

(3) Is timely and occurs at times and locations of convenience to the individual. 

(4) Reflects cultural considerations of the individual. 

(5) Includes strategies for solving conflict or disagreement within the process, including clear conflict-of-interest guidelines for all planning procedures. 

(6) Offers choices to the individual regarding the services and supports they receive and from whom. 

(7) Includes a method for the individual to request updates to the plan.

(8) Records the alternative home and community-based settings that were considered by the individual.

(That has got to be the greatest number of time I have had to type the word "individual" on any given day.)


I think this all sounds fairly complete, and airtight, but then I have zero experience actually living in this kind of environment.  


What do you, my readers, think? Do any of you have anything you would add, or change, to the above specifications? Without your input, I'm pretty much going to be echoing ASAN's recommendations in my comment on regulations.gov, but I'll hold off on commenting until, say, tomorrow night or Monday morning to see if I get any additional recommendations from comments here.  

Two Quick Links about Why the Fight over Evolution Matters

So, apparently Kevin Drum, a political commentator I don't read but who is apparently somewhat well-known, has written an article for Mother Jones declaring the fight over how whether biology is taught in public schools an irrelevant sideshow. 


I was nonplussed by this. Obviously, it's not the most important issue in the world --- it doesn't pose an existential threat the way climate change, peak oil/peak everything, overpopulation and hunger do, and it doesn't have the dire social consequences (or moral urgency) of, say, restricting access to contraception, the mass incarceration of people of color and poor people, increasing economic inequality or the deliberate demolition of the welfare state --- but I still felt like it had some importance that went beyond mere cultural border-policing*.


Amanda Marcotte at Pandagon and PZ Myers at Pharyngula both responded to Drum's article, and each of them made points that rang true for me, and helped explain why his statement bothered me.


Amanda:

I have to admit, I'm boggled at Kevin Drum's reaction to the news that nearly half of Americans are young Earth creationists ... . He completely misreads the situation and frankly does so in a way that I personally felt thrown under the bus.

... 

Kevin takes it as a given that fights over what's taught in high school are strictly about symbolism and have no real importance. I suspect that's a much easier view to take if you're the beneficiary of a good public school in a blue area or lucky enough to have gone through or been able to put your own kids through private school. For someone who went to a rural high school in Texas, the notion that high school doesn't matter strikes me as ridiculous in the extreme. 

The reason conservatives target high schools (and junior high schools and elementary schools) isn't because they're playing for peanuts. On the contrary, conservatives understand something liberals don't, which is that if you get people while they're young, you usually have them for life. This is also, incidentally, why conservatives pay more attention to pop culture than liberals. Liberals are great people --- I'm one of them! --- but  we have a tendency towards preening individualism and therefore discount the importance of things like what's in the classroom and what's on TV because we personally feel we're iconoclasts who aren't affected by it. Which can, in this case, cause us to neglect to remember that in fact this is the air that most people breathe, and the quality of that air matters. 

I also had strong feelings of no you're wrong when I read the paragraph in Drum's article where he dismisses "a 10th grade understanding of evolution" as something so piddling as to be dispensed with entirely, so much does it pale in comparison to the understanding of evolution one gets (presumably) in college, or in books on evolutionary biology. PZ, along with a slew of other biology professors in his comments and at Mother Jones, takes him to task for this; they write that, no, actually, they have noticed a change in how readily their students grasp what they have to teach. Almost as if high school curricula were geared toward preparing the students for college ... 


Anyway, what felt unfair to me was his assumption that, if people needed the knowledge, they could always pick it up elsewhere. This made me angry, because for many people there is no "elsewhere," or at least not one that is immediately accessible without guidance. 


(Who has tried to teach themselves a completely novel subject by checking out books on it from the library? Isn't it hard to figure out which books will be the ones you need? Technical books are often overly specific and assume you've already got a grounding in the subject, and are interested in exploring a particular question within it, and books for laypeople might not be thorough enough, and also might not be trustworthy). 


As for college, well, not everyone goes there, most of the people who go there will never encounter evolution in the classroom --- I didn't, and I majored in a biological science! --- and, again, college professors have enough to do without having to burn up lecture time with remedial material and correcting misinformation. Plus, not all colleges are created equal; some 


To top it off, what you know before college helps determine where you go, whether you go at all, and what you study! College is expensive, and for many prospective students (I know I felt this way when I was applying to colleges) the size of the scholarship you can get makes the decision for you. Scholarships for merit, as opposed to need (and there will always be more people who can't really afford college than there are people officially deemed too poor to afford college on their own), depend on how one performs on standardized tests. And what does standardized test performance depend on? What you learned in high school.


There's more: as Amanda also points out, what you're exposed to in high school shapes your interests and aspirations:

[M]y high school biology course didn't teach evolution. Without evolution, biology actually doesn't make sense, and instead it's just an anatomy class. ... I had no idea how fascinating biology actually was until I was an adult, and long past any chance of starting on that as a career path. Not that I think I would, but you can easily see someone like me making that choice as a young woman, but not really being able to because I was never offered that option in a realistic sense to begin with. 

(As someone who did study biology, and who loves Amanda's writing about science- and skepticism-related topics as much as I do her feminist writing, I can see it. Her interest in the subject is obvious, as is her commitment to find out what's true and how we know it's true. While she won't --- can't --- go into the kind of technical details I sometimes do here, her grasp of general, foundational principles is firm enough that I can easily forget she does not possess a biology degree herself.)


To shift to another aspect of why Drum's assessment is so horribly, horribly wrong, I quote PZ:

[T]his is going to be the century of dependence on the sciences. Climate change is going to hit us all; environmental crises are going to rise up all over the place; we're going to face shortages of energy and fresh water; emerging diseases will be a major concern; new biomedical technologies will cause cultural shocks; the whole world is going to change. Most people, I agree, will not be doing the research that leads to changes, and most of these problems will require political and social changes to correct, but how are you going to convince people to, for instance, change their fuel consumption habits when they're in complete denial of basic facts? How can you expect people to appreciate the importance of ecology and global interactions when you tell them that evolution doesn't matter? How will you get them to make rational decisions to control pandemics when they can't comprehend probability, epidemiology, and viral/bacterial evolution on even the most basic level? 

Most importantly, though, this utilitarian attitude that all that matters is what people can directly use in their day-to-day life is a denial of the Enlightenment and principles on which our country was founded. It's a rejection of the liberal idea that human beings should be well-rounded and informed individuals --- the informed citizenry that should be the foundation of a democracy. We can't expect everyone to be biologists or poets or political scientists, but we should expect that one outcome of a public education is an appreciation of the breadth of human endeavor, and at least a smattering of the fundamentals of a wide range of subjects, sufficient that, to make it practical again, students can make informed career decisions and understand a basic argument from evidence from an expert. We lack that now. And to wave away a simple but essential starting fact about our existence as unimportant is deeply offensive.     

I would add to his first paragraph that you don't have to wait for some futuristic nightmare scenario for these things to affect people's lives. Disease-causing bacteria are already becoming resistant to a whole lot of the antibiotics we use to fight them; lots and lots of species have disappeared or are disappearing; sensitive ecosystems are already being stressed, some to the breaking point by human activity, and humans are already failing to see why they should care***.

The picture he paints in that first paragraph has already come to pass, in the way that the proverbial camel is already in the tent, he just needs to take a few steps forward before it becomes obvious to everyone.

I would also add something else that I think denying evolution does: it makes it easier to think of humans as separate from, and above, the natural world and all those other animals. It allows us to think that what we do to it, to them, will never get back to us. 

(You don't have to deny evolution to get to that mindset, though: I see it arising just as readily from the erroneous view of evolution as a teleological process of development from simple to complex organisms, with humans sitting triumphantly at the apex. I've posted before about my annoyance with this picture of evolution.)

*This is what Andrew Sullivan, another famous political commentator whom I know to be obtuse, thanks to driftglass, an obscure political blogger who is quite acute**, has called belief in creationism a "cultural signifier" that describes the group membership of the believer rather than what that person actually believes about reality. That whole line of reasoning makes me queasy, but even if he is right that no one actually believes the Earth is six thousand years old and every animal species living on it was molded from clay and animated with the breath of a god, if that is what they decide shall be taught to children as fact, in place of the full history of life on Earth (as much of it as we know, anyway) and an explanation of how life on Earth has changed as Earth itself has changed, then those children grow up with a much poorer understanding of the world around them. An idea can have consequences in the real world whether people truly believe it or not; all they need to is act as if they believe it. Also, Andrew Sullivan is dumb.

**Hee. I made a geometry pun.

***This is not, at all, meant to be an exhaustive list, or even a primer on any of those subjects. I just put a recent news/research story in every link to make the point that, yes, this stuff is happening, and it's not just one or two isolated incidents.